Monday, December 26, 2011

Moganko for Cystic Fibrosis Awareness

One of the perks of having CF has been getting to know some truly amazing people who never would have been a part of my life if it weren't for our shared challenges. One of those people is my friend, Josh Mogren.

Josh is kind and funny with such an ENORMOUS heart, it's a little ridiculous! Josh also has cystic fibrosis, and he has made it his personal mission to help others (specifically children) within the CF community.
"I'm a lifelong Muppet Fan and my sister and I loved watching the Muppets while we did our daily CF treatments. I wanted to figure out a way to combine my personal experience with that same humor that made me smile as a child while teaching CF families and the general population about Cystic Fibrosis. I wanted to create something parents could share with their children that shows them how to deal with their daily healthcare routine for this serious disease with love, honesty and humor. I wanted something light-hearted that adults with cystic fibrosis could share with their friends and family, explaining a little bit about what they go through every day."   ~ Josh Mogren
And so... Moganko the puppet was born. Together, he and Josh have created several fun, upbeat, and educational videos like this one:


Recently, Josh and Moganko launched their biggest project so far:

The Moganko for Cystic Fibrosis Awareness Project!  


Josh's goal is to get Moganko to meet the Muppets and be featured in a public service announcement about CF. This is huge, friends, but it won't work without your help. So, here's what you can do:
Now, here's where I take just a moment to get serious. This has been an especially hard year for the CF community. Far too many lives have been lost to this disease! Sadly, off the top of my head, I can think of four individuals who have passed away just in recent weeks. Because of continued medical advances and the dedicated work of doctors and scientists, the outlook for someone with CF continues to get better. There are some amazing things in the works, including a very promising breakthrough drug that is currently awaiting FDA approval. Even still, the median age of survival for someone with CF is only mid-30's, and there are those who will not even live to see that many years.

I'm taking the liberty of speaking for the CF community as a whole when I say that we are positive, we are happy, we are strong, we are persevering, and we are living our lives with joy and hope... but we can't win this fight alone. WE NEED YOUR HELP!

Call me optimistic, call me crazy (trust me, you wouldn't be the first) but I THINK THIS WILL WORK, and I really want it to! Why? Because I love my friend and want him to succeed, because I've seen the good he does and I want him to keep sharing it with others, because this will raise some major awareness about CF (and awareness is key to finding a cure for this disease), because CF has taken the lives of too many children, spouses, friends, siblings, etc... and I'll be honest, I want this to work because I'm a little selfish. I want to live to see my daughter get married and have babies of her own someday. I have a lot of living left to do and about a million more memories to make.

Helping is easy and will only take a few clicks. Again, you can help by:
So what do you say, can we count you in?


Click here to visit:

1 comment:

  1. You've cause a phenomenon. You've made a babbling goofball speechless. I adore you. Thank you for believing in me!

    ReplyDelete

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