I just wanted to give a quick update. I did PFT's on Thursday and my FEV1 was up to 40%. Still very disappointing and incredibly low, but much better than 27%. When my doctor stopped by my room this morning he told me he thinks I've made a lot of progress in the past three days especially. He said he can see that I'm improving physically and emotionally each day. He is very optimistic and thinks that I can be up to 70% by the time I have PFT's again this Thursday. I, however, am not quite so optimistic but at least it gives me a goal to work towards. I'm terrified at the thought of going home with such low lung function, so I hope he is right.
I'm still having quite a bit of chest/back pain. After extensive observation, it has been determined that the pain isn't coming directly from my lungs, but that it's more muscular. They think that the tissue between my ribs has become sensitive from all the coughing and heavy breathing and that the muscles throughout my back have just been so overworked that they spasm every now and then. Also, my body is quite intolerant of the hypertonic saline they've been giving me during treatments. It tightens my chest up almost immediately and the pain just worsens from there.
The last blood test they did showed that my Tobra levels are high. Four days ago they were right where they needed to be, but at some point over the past few days that changed. They were so high, in fact, that it had started to affect my liver function. Needless to say things have been adjusted and I'm now being given a lower dose fewer times a day.
Overall I feel SO MUCH better. My energy is slowly returning and I feel a noticeable difference in my lungs every day. My sister in law and my dad both told me that I finally look like "Jenny" again. Things are getting better...